Medication
Advice
It is
important to keep tabs on your medication, below are a few guide lines you
may follow.
1. Take all
medication given by your doctor, never stop taking medication or change the
dose without your doctors permission.
2. Be sure
to follow the scheduled dosage times e.g Cyclosporin, there must be 12 hour
gab between each dose, e.g. (10am and 10pm)
3. Learn
everything about the medication you are given.
4. Always
keep medicines in the correct boxes, make sure there is a clear label
indicating the Name of the drugs, some are the same drug but different.. eg.
Cyclosporin (Noral) and Cyclosporin (Sandumin) - the expirery date and
dosage.
5. Keep all
medicines in a cool dry place.
6. Keep all
medicines out of reach of children.
7. If you
miss a dosage, Never double dose the next one, contact your transplant
coordinator or medication help line...
8. Take
all your medications everyday. Do not skip a dose, so many transplant
recipients have died due to the lack of care when taking their medicines!!
Post
Transplant check list
1. Check
your temperature at least twice daily - If 37.5 or above recheck in one
hour. If temperature is still raised INFORM
TRANSPLANT CLINIC
2. Weigh
yourself every morning - if you gain 2lbs or just under 1Kg in 48 hours INFORM
TRANSPLANT CLINIC
3. Check
your spirometry every morning (Lung patients) if it drops by 10% on previous
reading re-check in one hour, if the reading is still down, INFORM
TRANSPLANT CLINIC
4. INFORM
YOUR TRANSPLANT CLINIC
If you have prolonged episodes of vomiting or diarrhea.
5.
INFORM YOUR TRANSPLANT CLINIC
If you have flu like symptoms, unexplained tiredness, swollen ankles,
breathlessness.
6. Follow restricted
food guidelines.
7. Avoid
grapefruit, - grapefruit juice and Lilt.
8. INFORM
YOUR TRANSPLANT CLINIC
If you G.P. or local hospital prescribes ANY of the following medications:
* IBUPROFEN
(BRUFEN, NUROFEN)
* VOLTAROL (DICLOFENIC)
*
INDOMETHACIN
*
ALLOPURINOL
* HIGH DOSE
ASPIRIN
*
ERYTHROMYCIN, CLARITHROMYCIN
9. Remember
not to take herbal remedies before checking with the transplant clinic that
is is safe to do so. Some herbal remedies interact with Cyclosporin.
10. Remember
to attend all your clinic appointments and bring with you all your
medications, blue book and overnight bag at each visit.
Can I
Drink Alcohol?

After a
transplant there is no rule that states you cannot drink alcohol but it is in
a transplant recipients best interests to drastically reduce or cut out
alcohol all together.
Alcohol does
not react well with the ant-rejection drugs such as cyclosporin and can alter
the levels within the blood which may cause latter problems such as rejection.

Myself
personally I can say I do not drink alcohol whatsoever as it seems to be an unnecessary
risk which is best to avoid.
When
can I drive?

You may start
driving eight weeks after your transplant. A certificate of "Fitness to
drive" will be required from your doctors. You should inform the DVLA of
your operation and you will be sent a questionnaire to complete.
Avoid
Food Posioning After Transplant
It is
important to be aware that eating well will help you to stay well. Always be
aware of food safety and avoid the risk of food poisoning because taking
medication that suppresses your immune system means you may have severe
symptoms if you do get food poisoning.
Shopping
and Packing Foods
Buy food with
the latest "Use by date" and eat it within the expiry date. Avoid
foods in damaged containers.
When packing
foods after purchase, wrap fresh foods and raw meat separately and place in
separate carrier bags.
Take chilled
or frozen foods home as quickly as possible and store them in the fridge or
freezer as soon as you can.
Storing
Cold Foods
Don't keep
food in the fridge beyond the "use by date" and eat as soon as
possible.
Cold
temperatures slow the growth of bacteria. Aim for a fridge temperature of 4
degrees Celsius (0c)
using a fridge thermometer to check this. Defrost your fridge and freezer
regularly to ensure efficient cooling.
Store foods
carefully in the fridge. Raw foods should be stored separately from cooked
foods to avoid cross contamination. Store raw meats on the bottom of the
fridge in a sealed container to avoid drips into salad and vegetable box.
Cover all
unwrapped food.
It is best to defrost foods in
the fridge. Alternatively if the food is to be cooked immediately defrost in
the microwave.
Cooked food that is not eaten
straight away should be cooled as rapidly as possible and then stored in the
fridge. Do not leave it cooling at room temperature for more than an hour.
Food
Preparation.
Keep your
kitchen clean. Wash your hands before touching food and after handling raw
meat. Wash hands after using the dustbin or going to the toilet (See wash
hands procedure) Cover any cuts and grazes.
Keep worktops,
chopping boards and utensils clean by washing regularly with hot soapy water
and antibacterial spray.
When preparing
foods, wash utensils and worktops between stages. Avoid cross contamination by
using separate chopping boards and knives for raw meat and cooked foods and
fresh vegetables.
Wash ALL fruit
and vegetables thoroughly before eating. Even ready-washed salads and
vegetables must be washed again carefully before eating.
Do not use dishcloths.
Keep all tea towels and brushes clean, changing them regularly. Any washing up
brushes or scourers should be disinfected in a chlorine based disinfectant
solution.
Cooking
and re-heating Foods
Foods may only
be re-heated once. Food must be re-heated right through until piping hot.
Throw away left over re- heated foods.
If using a
microwave oven to cook or re-heat foods, observe the correct standing time to
ensure that the food is at an even temperature before it is eaten.
Cook all meat
thoroughly. If possible use a meat thermometer to check it is uniformly above
75 degrees Celsius.
High
Risk Foods to avoid
High risk
foods may contain salmonella or listeria. Eating any of the foods in the
following list may put you at increased risk of suffering from food poisoning.
*Avoid raw
eggs and home made dishes made with uncooked eggs such as mayonnaise, mousse,
ice cream, raw eggs in drinks, custard and confectioner's custard in fruit
tarts and pies. Food made with pasteurised eggs is safe for consumption, foe
example bottled salad dressings, which are heat treated and sold in sealed
containers.
*Avoid soft
boiled eggs, only eat eggs that are thoroughly cooked until the white and
yolks are solid.
*Avoid all
cheeses produced from unpasteurised milk such as goats cheese, feta, mars Capone
and unpasteurised brie and Camembert (Check the label). Blue veined cheese
should also be avoided.
* Foods
containing live bacteria such as milk puddings, yogurt and yogurt drinks maybe
harmful.
* Raw or
partially cooked meats, poultry and fish like smoked salmon, sushi, and
partially cooked steaks. Meats that have only been smoked rather than cooked
should also be avoided.
* Pate' should
NEVER be on your shopping list.
* Don't eat
shellfish like shrimps, prawns, crab, lobster, mussels and scallops.
* Raw fruit
and vegetables and ready to eat salads are high - risk and should be washed
thoroughly.
* In the U.K
it is safer to drink chlorinated tap water, rather than bottled water. If
traveling abroad discuss this with your transplant nurse.
Pets and
Animals

Household pets
are a source of bacteria and infection. Keep them out of the kitchen and NEVER
allow them near foods or on worktops.
Prepare your
animal's food on a surface and with utensils specially kept for the purpose.
Never use utensils or the work surface for preparing food for human
consumption.
Do not let
your pets sleep on beds or furniture.
When gardening
avoid contact with animal faeces. Always wear protective gloves, wash hands
thoroughly after finishing gardening or handling litter trays.
Wash hands
after petting animals especially if about to prepare food. Avoid allowing your
pet to lick your hands and face.
De-worm cats
and dogs regularly.
Seek urgent
medical advice if bitten or scratched by a cat or dog.
(U.K Only) -
If you have any further questions contact the nutrition and dietetic
department on tel: 019895 828501
Information source
thanks to Royal Brompton & Harefield NHS trust