important to keep tabs on your medication, below are a few guide lines you
1. Take all
medication given by your doctor, never stop taking medication or change the
dose without your doctors permission.
2. Be sure
to follow the scheduled dosage times e.g Cyclosporin, there must be 12 hour
gab between each dose, e.g. (10am and 10pm)
everything about the medication you are given.
keep medicines in the correct boxes, make sure there is a clear label
indicating the Name of the drugs, some are the same drug but different.. eg.
Cyclosporin (Noral) and Cyclosporin (Sandumin) - the expirery date and
5. Keep all
medicines in a cool dry place.
6. Keep all
medicines out of reach of children.
7. If you
miss a dosage, Never double dose the next one, contact your transplant
coordinator or medication help line...
all your medications everyday. Do not skip a dose, so many transplant
recipients have died due to the lack of care when taking their medicines!!
Transplant check list
your temperature at least twice daily - If 37.5 or above recheck in one
hour. If temperature is still raised INFORM
yourself every morning - if you gain 2lbs or just under 1Kg in 48 hours INFORM
your spirometry every morning (Lung patients) if it drops by 10% on previous
reading re-check in one hour, if the reading is still down, INFORM
YOUR TRANSPLANT CLINIC
If you have prolonged episodes of vomiting or diarrhea.
INFORM YOUR TRANSPLANT CLINIC
If you have flu like symptoms, unexplained tiredness, swollen ankles,
6. Follow restricted
grapefruit, - grapefruit juice and Lilt.
YOUR TRANSPLANT CLINIC
If you G.P. or local hospital prescribes ANY of the following medications:
* VOLTAROL (DICLOFENIC)
* HIGH DOSE
not to take herbal remedies before checking with the transplant clinic that
is is safe to do so. Some herbal remedies interact with Cyclosporin.
to attend all your clinic appointments and bring with you all your
medications, blue book and overnight bag at each visit.
transplant there is no rule that states you cannot drink alcohol but it is in
a transplant recipients best interests to drastically reduce or cut out
alcohol all together.
not react well with the ant-rejection drugs such as cyclosporin and can alter
the levels within the blood which may cause latter problems such as rejection.
personally I can say I do not drink alcohol whatsoever as it seems to be an unnecessary
risk which is best to avoid.
can I drive?
You may start
driving eight weeks after your transplant. A certificate of "Fitness to
drive" will be required from your doctors. You should inform the DVLA of
your operation and you will be sent a questionnaire to complete.
Food Posioning After Transplant
important to be aware that eating well will help you to stay well. Always be
aware of food safety and avoid the risk of food poisoning because taking
medication that suppresses your immune system means you may have severe
symptoms if you do get food poisoning.
and Packing Foods
Buy food with
the latest "Use by date" and eat it within the expiry date. Avoid
foods in damaged containers.
foods after purchase, wrap fresh foods and raw meat separately and place in
separate carrier bags.
or frozen foods home as quickly as possible and store them in the fridge or
freezer as soon as you can.
food in the fridge beyond the "use by date" and eat as soon as
temperatures slow the growth of bacteria. Aim for a fridge temperature of 4
degrees Celsius (0c)
using a fridge thermometer to check this. Defrost your fridge and freezer
regularly to ensure efficient cooling.
carefully in the fridge. Raw foods should be stored separately from cooked
foods to avoid cross contamination. Store raw meats on the bottom of the
fridge in a sealed container to avoid drips into salad and vegetable box.
It is best to defrost foods in
the fridge. Alternatively if the food is to be cooked immediately defrost in
Cooked food that is not eaten
straight away should be cooled as rapidly as possible and then stored in the
fridge. Do not leave it cooling at room temperature for more than an hour.
kitchen clean. Wash your hands before touching food and after handling raw
meat. Wash hands after using the dustbin or going to the toilet (See wash
hands procedure) Cover any cuts and grazes.
chopping boards and utensils clean by washing regularly with hot soapy water
and antibacterial spray.
foods, wash utensils and worktops between stages. Avoid cross contamination by
using separate chopping boards and knives for raw meat and cooked foods and
Wash ALL fruit
and vegetables thoroughly before eating. Even ready-washed salads and
vegetables must be washed again carefully before eating.
Do not use dishcloths.
Keep all tea towels and brushes clean, changing them regularly. Any washing up
brushes or scourers should be disinfected in a chlorine based disinfectant
and re-heating Foods
Foods may only
be re-heated once. Food must be re-heated right through until piping hot.
Throw away left over re- heated foods.
If using a
microwave oven to cook or re-heat foods, observe the correct standing time to
ensure that the food is at an even temperature before it is eaten.
Cook all meat
thoroughly. If possible use a meat thermometer to check it is uniformly above
75 degrees Celsius.
Risk Foods to avoid
foods may contain salmonella or listeria. Eating any of the foods in the
following list may put you at increased risk of suffering from food poisoning.
eggs and home made dishes made with uncooked eggs such as mayonnaise, mousse,
ice cream, raw eggs in drinks, custard and confectioner's custard in fruit
tarts and pies. Food made with pasteurised eggs is safe for consumption, foe
example bottled salad dressings, which are heat treated and sold in sealed
boiled eggs, only eat eggs that are thoroughly cooked until the white and
yolks are solid.
cheeses produced from unpasteurised milk such as goats cheese, feta, mars Capone
and unpasteurised brie and Camembert (Check the label). Blue veined cheese
should also be avoided.
containing live bacteria such as milk puddings, yogurt and yogurt drinks maybe
* Raw or
partially cooked meats, poultry and fish like smoked salmon, sushi, and
partially cooked steaks. Meats that have only been smoked rather than cooked
should also be avoided.
* Pate' should
NEVER be on your shopping list.
* Don't eat
shellfish like shrimps, prawns, crab, lobster, mussels and scallops.
* Raw fruit
and vegetables and ready to eat salads are high - risk and should be washed
* In the U.K
it is safer to drink chlorinated tap water, rather than bottled water. If
traveling abroad discuss this with your transplant nurse.
are a source of bacteria and infection. Keep them out of the kitchen and NEVER
allow them near foods or on worktops.
animal's food on a surface and with utensils specially kept for the purpose.
Never use utensils or the work surface for preparing food for human
Do not let
your pets sleep on beds or furniture.
avoid contact with animal faeces. Always wear protective gloves, wash hands
thoroughly after finishing gardening or handling litter trays.
after petting animals especially if about to prepare food. Avoid allowing your
pet to lick your hands and face.
and dogs regularly.
medical advice if bitten or scratched by a cat or dog.
(U.K Only) -
If you have any further questions contact the nutrition and dietetic
department on tel: 019895 828501
thanks to Royal Brompton & Harefield NHS trust